Lyra’s IFSP

Here is Lyra’s IFSP. She was 4 months old when it was written. We are just beginning her annual review to update all of her goals. I hope this is helpful to other parents.

Lyra’s IFSP

Lyra’s “Present Level of Development” -This is actually included with Lyra’s IFSP. It was written before the actual IFSP to basically get a baseline of Lyra’s abilities.

Lyra the Pinball!

Lyra is walking pretty much all the time. I rarely see her crawl anymore. This is AWESOME…except that she is like a pinball when she walks. I keep the toys, books, blankets and sippy cups picked up as much as possible, but Lyra drags everything out all over the place. Then she walks around the room tripping on this, bumping into that, and sideswiping everything else. I know toddlers fall a lot when learning to walk, but I think its more than just being a toddler. The only identifiable issue that we can try to correct, is that Lyra doesn’t look down, as she walks across a room. She just PLOWS right on through. Her TVI says this (not looking down) is fairly typical of kids with visual impairments. Also contributing to her frequent bumps and bruises is her poor depth perception. She’ll misjudge how close she is to the wall or climbing gym and clip the side of her head on it.
We are working with her and trying to use some sound cues to get her to stop and look down. And lots of kisses for the bumps and bruises. She will be having an evaluation with an Orientation and Mobility specialist in a month or two. This is a standard evaluation done once a child starts walking. The O&M specialist will be able to help us recognize/identify which trips and falls are a result of her low vision and which are just typical toddler falls.

She’s been doing so good… I had started to forget she had any visual impairment for a while.

It just makes me sad…


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O & M Patrol

 

On Saturday March 31st, my husband Troy and I participated in a training session through the Children’s Center for the Visually Impaired called O&M(orientation and mobility) Patrol. The goals were to get an idea of what its like to live with low vision and to gain a better understanding of various ways to improve orientation and mobility for our daughter. There were a total of 48 parents and grandparents of children with visual impairments. First, we listened to/watched a presentation covering the basics of orientation and mobility. Orientation is knowing where you are in space and where you want to go and mobility is being able to carry out a plan to get there. We learned a lot of great techniques, activities, and tools to help at all the various ages and stages of our child’s development. We even got to look at and play with a few “mobility tools” like a white cane and this electronic sensor thingy that vibrated in your hand when you walked too close to an obstacle. Honestly, before this training, the idea of Lyra ever using a white cane to get around gave me a huge lump in my stomach. It’s not such a scary thought anymore.
After our classroom instruction it was on to the field training. We were all grouped into pairs and then assigned a coach. Troy and I were together. Each group was given a pair of simulator goggles that simulated as closely as possible, the vision of their child. Our goggles simulated 20/400 vision. They also gave us money…$3.25…wooohoooo! I wore the goggles first. All 48+ of us had the same assignment. We had to walk out of the building to the bus stop on the corner, take the city bus to Crown Center Plaza (DON’T FORGET TO ASK FOR A TRANSFER), walk around the shopping center and buy something for less than $2.00. Then we switched, and Troy basically did the same thing and then took the bus back.
At first, wearing the goggles was a little nauseating. Even just walking was weird feeling. One difference that I noticed right away was my depth perception. Its hard to sit down on a bench when you aren’t exactly sure how far away it is or knowing where to put your foot to step onto an escalator. I couldn’t read street signs from the bus and when we went into a coffee shop to buy something I couldn’t read the menu. Thank goodness I had my “sighted guide” Troy there to help me order my coffee. I also frequently found myself putting my face really close to things. I doubt someone would want to buy any of the bagels after watching me with my nose an inch away from them trying to see what kind they were. That kind of made me sad…worrying about what onlookers might think of my child. Overall, my vision wasn’t THAT bad, which was comforting. I would have liked to take the goggles home to wear longer and see what it would be like to do all the stuff I normally do with low vision.
This program was a wonderful learning experience. We each received our own little award certificate in recognition of completing the O&M training. We were also sent home with a huge packet of information and resources for orientation and mobility. And even though it only lasted a short time, I was very grateful that I had the opportunity to take a look at the world through my daughter’s eyes…kind of.

Here are some articles/links for more information:


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Vision Skills


4-3-07

Today Lyra and Miss Kim, her “teacher of the visually impaired” worked on putting on and taking off stars on her star stacker toy. She is pretty good with the taking off, but not so coordinated when it comes to putting them back on.

We also read some books, encouraging tactile exploration. She did some good looking at the pictures, but she seems to be much more interested in turning the pages and eating the book. Kim suggests we try to get her to explore the various textures of touch & feel books. We need to get some more touch & feel books or just make our own.

One of our favorite activities with Miss Kim is playing with our box of stuff. Its just a small orange box that we filled with various toys/objects. We work on taking out and putting in, identifying or finding objects by name(“Where’s the duck?”), uses of some of the objects(hairbrush, telephone), and anything else we think of. We keep the same things in the box all the time.Here is what we have in it: ball, book, duck, egg shaker, baby, two green blocks, sunglasses, hairbrush, telephone, shoe, and a binky.I think that’s all. I think she is saying “duck” when she pulls that out, but its definitely debatable.

Today Lyra was able to follow a ball across the room

and retrieve it twice. Yay!!!!!


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Occupational Therapy Goals

Today at Lyra’s OT session, we began updating her IFSP goals/outcomes for the next 6 months. These are what we want Lyra to be doing somewhere between now and when she is 16 months old. We really just got started with updating these today. We may add some goals in these areas and we still need to set some for cognitive skills and self-help skills. These are not necessarily in any order and we will check them off as she reaches the goals.

Motor Skills
-lower self from furniture
-cruising
-stand independently momentarily
-walks forward, 2 hands held
-walks, 1 hand held
-stand alone well
-walking 2-3 steps independently
-creeps upstairs
-roll ball back and forth
-pick up small object with neat pincer grasp
-isolate/point with index finger
-put objects into container (voluntary release)
-builds 2 cube tower

Social Skills
-waves/responds to bye bye
-babbles with inflection
-imitates familiar gesture

Early Intervention

Early Intervention Services-4 months-present
Vision Specialist and Occupational Therapist come once a week for an hour, one on Tuesday, the other on Thursday.
Work on vision skills- tracking, following, depth perception
Work on motor skills, reaching, grasping, holding head up, rolling over
Work on using vision and motor skills together- opening mouth when spoon is coming.
Prebraille (kids with albinism might use braille, might read print, or both for a while)

Tests/Assessments used
-HELP (Hawaii Early Learning Profile)
-OREGON Skills Inventory
-Parent/team report

IFSP Outcomes for Vision (9/19/06)
-Fixate on a variety of toys and faces
-Localize sounds and voices
-Follow in all directions
-Track in all directions
-Gaze shift between two toys and faces
-Monitor light sensitivity
-Scanning her environment
Time frame for goals-6 months

IFSP Outcomes for Motor skills (9/19/06)
– Lyra will use her vision to purposefully grasp a toy
-Lyra will play with a toy using both hands at midline, medium size toy, bottle, object to mouth
-Lyra will hold an item in each hand and bring them together at midline, i.e. banging 2 toys together
-maintain grasp on item in each hand
-Lyra will remove 3 hand size objects from a container
-Lyra will put 3 hand size objects into a container (voluntary release)
-Lyra will maintain position on all 4’s for 1 min.
-Lyra will crawl forward on all 4’s five feet
-Lyra will sit up with minimal support
Time frame for goals-6 months

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