The Real Albinism

I have recently been talking with Kansas City area film maker Xavier Dejesus. He is making a documentary about albinism called “Can You See Me?” As a parent of a child with albinism, he intends to present a positive and realistic representation of albinism. He also wants to focus on the social aspects of albinism and the challenges parents face as they raise a child with albinism. Parents of children with albinism and individuals with albinism will share their experiences, their difficulties, and all the emotions that go along with them. They can share what they’ve learned, what has helped them and what makes them angry or sad.

This is a wonderful opportunity to educate the society about what albinism really is, and to dispel the myths that so many believe to be facts. Xavier is very passionate in his strive to teach society the truth about albinism, as am I. I will support and promote this film in every possible way. Anyone who would like more information or who would consider being interviewed for the film should email Xavier at

Here is a link to a newspaper article about the film. Can You See Me?

Here is my Lyra.

My Lyra

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