Vision Update – 6 years old

Vision Update – 6 years old

I want to preface this post with a little bit of information about me and why I haven’t been writing as much lately.   A little over a year ago I started graduate school, pursuing a Masters of Science in Special Education degree and certification as a Teacher of the Visually Impaired.  Although very time consuming, my first 2 semesters went really well.  Then this past spring, during my 3rd semester, I became very sick and ended up having 2 surgeries and spending nearly 8 weeks in the hospital.   I will be having surgery again this fall, but I hope to be able to resume school next spring.  Needless to say, finding time to write has been a little difficult. 🙂

Lyra’s last appointment with her ophthalmologist was back in February of this year.  They had to dialate her eyes at this appointment, which can be quite a challenge!   Even though immediately after the process, she realizes it doesn’t hurt and it’s not so bad, we basically have to hold her down and pry her eyes open to get the eye drops in her eyes.  Not fun!

The health of her eyes is still good/normal.  Her nystagmus remains minimal in both the speed and distance of the eye movements.  We haven’t seen any significant changes or increases in her strabismus, but her doctor noted that her left eye has begun turning out occasionally/intermittently.  This is known as exotropia.  I have seen Lyra’s eye do this only a few times and I really have to be looking for it to even notice it.  I was a little surprised to hear that her eye was turning OUT, since the strabismus surgery she had as a baby was to correct her eyes turning in- esotropia.  Also, she still doesn’t seem to have a consistent “null point”.  I sometimes see her looking over her glasses, but it’s hard to tell if it’s just that…or her trying to find a null point.

Her acuity was tested using pictures and letters on a computer screen about 20 feet away.  Using both eyes, she was occasionally able to read the letters at 20/180 and consistently able to read them at 20/200.  An astigmatism continues to be her primary correctable vision problem and she had quite an increase in her refractive error at this appointment.  Her eyeglasses prescription was increased to +4.25 in both eyes.  Her doctor also prescribed +2.50 bifocal lenses to improve her near visual acuity.  As suggested, we also decided to order Lyra’s glasses with a slight tint to help reduce photophobia.  Last time we chose the lightest gray shade of tinting, but this time we went with the lightest brown shade.  The brown tint is more noticible than the gray was, and it’s debatable whether either have done any good.  You can kind of see the tinting on her glasses in the picture below.

I personally don’t like the brown tinted lenses because it seems like it brings out the “red” in her eyes. 🙁   The gray lenses didn’t do that.  Her doctor also recommended we get her prescription sunglasses. We hadn’t before, because of the price.  After sending them back twice to have the lenses darkened, Lyra finally got her sunglasses.  Then I told her that if she broke them, she had to get a job. 😛

Also…Lyra had her first official “Low Vision Evaluation” this past May.  The primary reason for this was so that she could be prescribed magnification/low vision devices.  I’ve written way too much already, so I will share the details of that evaluation in my next post as well as all the information about her newest IEP. 🙂


  1. Hi there! Your daughter is beautiful! We have a 4 month old with at least ocular albinism, maybe OCA. I was wondering if Lyra’s recent visual exam w 20/180 measured visual acuity was with or without her glasses? Thanks!

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