Vision Update- 22 months

Vision Update- 22 months

I have been meaning to post this for several weeks. Lyra visited her pediatric ophthalmologist for a check-up last month.

They dialated her eyes this time to see if her refractive error had changed, and it did. Her prescription changed from +2.50 to +3.25 in her left eye and from +2.75 to +3.75 in her right eye. It’s not a huge jump or anything, but to change that much in only 6 months freaks me out just a little. Dr. Grin said her biggest issue is her astigmatism. She said it is fairly common for people with albinism to have a significant astigmatism.
So she is getting new glasses. We decided not to get her the transition lenses this time. With Lyra becoming more comfortable outside, I worried that the transition lenses just wouldn’t be dark enough. Instead we are getting her a pair with clear lenses and also a pair of prescription sunglasses. Hopefully we will have them in a week or so.

The health of her eyes is good, no problems there. Dr. Grin said the alignment of her eyes still looks great and her nystagmus is very minimal. I’ve said this before, but I rarely notice her nystagmus at all. I often wonder how this compares to other kids with albinism. I say her nystagmus isn’t that bad, but what does that mean really? As soon as I have some time (Ha Ha), I am going to get a close up video of her eyes and her nystagmus and post it on here so you all can see exactly how bad or not bad it is.

As far has her functional vision progress goes, I have just one thing I want to mention while I’m thinking about it. đŸ™‚ She is doing really good with walking up and down steps inside on her own. When walking up or down steps outside, she is extremely hesitant and ALWAYS needs help. She clutches my finger tightly and I have to say “step” for EVERY step so she knows to feel for it with her foot and then go up or down. I really don’t think she has a clue where the next step is. It just tells me how much her sensitivity to those bright lighting conditions can affect her overall visual abilities.


  1. Let me know how she does with the sunglasses, I am thinking of doing that next time for Madison. I am glad that it seems like her eyes are doing well.

  2. That is great! I think many people take those things for granted, but they are so exciting! I hope things continue to go so well.

  3. Hi! I love your website!! My daughter has albinism. She is 9 now. I sooooooo remember all the fears and worry that I went through when Lexie was that age!! we have patched, we’ver had surgery and then were scheduled for a second surgery and it was cancelled at the pre-op because she had gotten much better (power of prayer!) Anyway, I am always willing to answer questions or be a sounding board. It sounds like you are on top of things and a great advocate for Lyra. It is so important to do your own research and question everything. I made the same decision about glasses. When Lexie was little, we always used solobambini glasses. They are fabulous for little ones because they are molded plastic (soft and no hinges to worry about) they look precious and they are very comfortable. she wore them from 6 months to about 5 years old. since you change pretty often (or at least we did) you might check them out. . The owner is very helpful as well. Let me know if I can help you in any way…I always had people I corresponded with who were “ahead of me” in the albinism game.

    good luck!!
    Angela Hobby

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