When Lyra was born, her diagnosis of albinism was a shock to all of us. The weeks and months following were a time of confusion and worry about what it all meant.  Neither my husband nor I had ever seen someone with albinism in person.  One thing that we really wanted to be able to do was to meet and connect with an adult with albinism. The very first person with albinism we met after Lyra was born was a local woman named Heather Kirkwood.  The first time we met Heather was at our NOAH Bowl-a-Thon in 2007.  Since then, she has joined us atRead More →