Last year I discovered that at Lyra’s elementary school, they utilize A LOT of parent volunteers in regular classrooms and throughout the school building.  Knowing that most of these volunteers would know little or nothing about albinism, I decided to create a document with some of the need to know information about Lyra.  I thought it would also be useful for Lyra’s teacher to have available for substitute teachers. My biggest problem has been deciding which information is “need to know” and which isn’t. This document started out as 3 pages!!!  🙁  I now have it cut down to about 1 ¼ pages, but if IRead More →

We are still working on finishing up Lyra’s IEP for this year.  Hopefully we will have the final version completed by the end of next week.  The following is what I wrote to be included in the “Parent Concerns” and “Plans for the Future” sections of her IEP. ________________________________________________ Lyra is a sweet, caring, and expressive little girl. She is relentlessly curious and never seems to stop asking questions. She is fiercely independent, stubborn, and intelligent. At times, her brain/mind seems to move too quickly for her mouth or body to keep up. Lyra has advanced language development, is very articulate and is good atRead More →

FINALLY!  Here is Lyra’s IEP for next year.  It’s definitely not perfect, but it’s okay…for now.  We’ll see how things go once school starts.  I’ve been feeling like a total slacker as a parent lately.  I still haven’t scheduled Lyra’s Low Vision evaluation and the first day of school is only a month away.  Until this is completed, Lyra doesn’t have any goals or services related to assistive technology/low vision devices, written into her IEP. The “accommodations for physical education” are crap!  I don’t know how that slipped by me.  Some of her goals are too broad, especially the first one. Then there is the subjectRead More →

I am still in denial that she is actually going to be starting kindergarten this fall.  She’s too LITTLE for kindergarten! 🙁 I tell her I don’t want her to grow up, but then she tells me, “it’s okay mommy, I’ll still be your baby.” 🙁Read More →

Below is the long version of an article I wrote that was published in the latest issue of Albinism Insight.  🙂 This is not a comprehensive list.  I’m not a teacher, although i do have a teaching degree.  The advice I give is based on my experience as a parent, having 2 children(ages 4 and 14) who have IEP’s and the dozens of IEP meetings I have prepared for and attended.   Over the years I’ve made plenty of mistakes, but through them learned a lot. I now go into IEP meetings with much more confidence and competence and with far less fear than I didRead More →

We finally completed Lyra’s IEP for the 2010-2011 school year.  Probably the biggest difference between this year’s IEP and last year’s is in the number of goals.  Last year we had only 2 goals and this year there are 5. Communication and teamwork among Lyra’s IEP team members, including myself has improved significantly compared to last year.  There’s a lot less arguing and frustration during IEP meetings.  This is a big deal to me as I am already looking towards next year, when Lyra will be in a new building with a brand new IEP team.  Knowing that her current IEP team members are allRead More →

This is the first of several posts that are LONG overdue!  There is so much I have to talk about that I hardly know where to begin.  Plans for next year are looking really good, but before I start talking about her new IEP, let me just summarize this past year… Lyra had a very successful first year of preschool.  She is progressing very well with learning both print and braille.  She has not shown a bit of resistance to the braille learning and has not developed any bad braille reading habits.  She is progressing VERY quickly with her print skills.  She can identify allRead More →

The information below is from Lyra’s 3rd quarter progress reports from the private preschool she attends. The first section is from her braille instructor and the other is from her regular classroom teacher.  I am quite pleased with their reports.  😀 Lyra uses a braillewriter adapted with unifix cubes on the keys. She inserts paper with help and rolls paper in independently. She produces entire lines of full cells and 2 letters (a, I) with strong pressure. She allows assistance to position her fingers to produce her first name. She has asked about upper case letters and has used the capital sign in front ofRead More →

Lyra is doing great in preschool.  One thing that I haven’t yet mentioned…at least I don’t think I’ve mentioned, is that Lyra actually attends two different preschools. One is the school district preschool.  This is the one that handles her IEP.  She attends this one on Tuesdays and Thursday mornings and she receives direct braille/vision services once a week for 30 minutes.  The other preschool is a private school specializing in children who are visually impaired.  Lyra attends this school on Monday and Wednesday mornings and receives direct braille instruction once a week for 30 minutes.  So she is actually receiving double the amount ofRead More →

This first video is Lyra finding braille “a” letters that are hidden within a line of full braille cells. The first page only has one “a” and the second page has three.  The second video is of her identifying print letters and then writing her name. 🙂 Photo and video editing at www.OneTrueMedia.com Make an on-line slideshow at www.OneTrueMedia.comRead More →