I’ve mentioned a lot of different types of assessments in my last few posts.  Knowing what they are and how they differ can be really confusing.  Also, I tend to use the words “evaluation” “assessment” and “examination” interchangeably, which probably adds to the confusion.   Here are some links to information that define them and provide a much better explanation than I could.  😛 Overview of Assessments Functional Vision Assessment Low Vision Evaluation &  Low Vision Examination Learning Media Assessment This next assessment is one that I have only recently heard about.  It seems to be similar to a Low Vision Evaluation, but completed by anRead More →

In my last post about Lyra’s IFSP-IEP transition, I  said I would post the answers to my questions, in my next post.  I apologize for keeping you all waiting for so long.  I had intended to write that post before Lyra’s transition meeting on February 6th.  We  have already had that meeting, so I have twice as much information to share…well kind of.  The actual “transition meeting” was rather uneventful.  More on that later. From our pre-“transition meeting” meeting we had back in January, I learned that our district has 4 Teachers of the Visually Impaired on staff.  I was VERY pleasantly surprised about that! Read More →

Lyra has been a busy girl.  These are current IFSP goals that she has met and a whole bunch of other milestones she’s met.   Mommy has been a busy mommy.   I have a ton of updates I need to write about and hopefully I’ll get those posts written over the next few days.  🙂 IFSP GOALS MET- VISION AND COGNITIVE SKILLS Will recognize when book is upside down and correct it Will match object to picture
Will sort, match, identify colors (red, green, yellow, blue) Will sort, match, identify colors and other concepts including size and shape Will follow directions and identify objects using spatial conceptsRead More →

Normally Lyra’s TVI and OT come separately.  Lately they have been coming for visits together to try and work with Lyra outside where she is less familiar with the environment.  However, the last two Tuesday’s when they have come, it has been raining outside. So, here is a video of their latest visit.  🙂Read More →

Lyra has been been working on activities using a light box during her last few sessions with her TVI. Specifically she has been working on shapes and color sorting. Using the light box really motivates her to sustain her attention to an activity for a longer period of time. It makes the learning activity more fun and visually stimulating. Illuminating the colors and shapes makes them easier to see.Read More →

This is an older video, but it’s a good one to have on here for everyone to see. This is of one of Lyra’s first few sessions, either 3rd or 4th, with her Teacher of the Visually Impaired (TVI) and Occupational Therapist (OT). She is 5 and a half months old. Her TVI and OT always came together for Lyra’s sessions for about the first 6 weeks.Read More →

‘Ehhhwhoa’ and ‘Buh-bah’= Hello and Goodbye Lyra’s speech development is still delayed, and she has yet to begin receiving actual services from a speech therapist. This will begin next week. She was evaluated in October, but the evaluation was incomplete. In addition to that, staffing issues caused a delay in beginning services, so we had to get another evaluation completed by a different speech therapist. It has been frustrating to say the least. Hopefully everything will go as planned next week and Lyra can get started. At this point, she’s just making gestures (thank goodness she learned a bit of ASL) and grunting. But she’sRead More →

  Lyra had her first Orientation and Mobility assessment on October 16th. She was 17 months old. I had been and still am doing a lot of research on Orientation and Mobility, and the benefits of the services to infants, toddlers, and preschoolers. Orientation and mobility(O&M) is 3 things: knowing where you are, knowing where you want to go, and knowing how to get there. Do kids with albinism need these services? Maybe…maybe not. It depends on a lot of things. It can’t be determined based on visual acuity alone. It depends on how they are using the vision they have, how they are movingRead More →

Lyra has been receiving Early Intervention(EI) services since she was about 5 months old. The level of services and method of services vary from child to child and state to state. These services are provided under the federal law IDEA (Individuals with Disabilities Education ACT). I have come across parents that have never heard of EI services or others that are receiving inadequate services. Children with albinism are AUTOMATICALLY eligible for services based on medical diagnosis. All children should have the option to receive these services. Unfortunately, even with the federal law, some kids don’t get the opportunity. Sometimes its hard for parents to findRead More →