{"id":96,"date":"2008-03-01T20:39:16","date_gmt":"2008-03-02T01:39:16","guid":{"rendered":"http:\/\/www.parentofachildwithalbinism.com\/2007\/08\/01\/resources-2\/"},"modified":"2008-03-01T20:39:16","modified_gmt":"2008-03-02T01:39:16","slug":"resources-2","status":"publish","type":"post","link":"https:\/\/parentofachildwithalbinism.com\/?p=96","title":{"rendered":"Resources"},"content":{"rendered":"

Albinism Information
\n<\/u><\/strong>
\nNOAH<\/a><\/strong> -The National Organization for Albinism and Hypopigmentation- <\/font>An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.<\/font><\/p>\n

Albinism International<\/a><\/strong> -An online support community for people with albinism, parents of children with albinism, and people related persons with albinism.<\/font><\/p>\n

Albinism Fellowship UK<\/a><\/strong> –<\/font>An organization that aims to provide information, advice, and support for people with albinism and their families.<\/font><\/p>\n

SARA Foundation<\/a><\/strong> -Supporting Albinism Research and Awareness- A site created to help parents who have children who are diagnosed with albinism.<\/font><\/p>\n

Positive Exposure<\/a><\/strong> – Positive Exposure is a not-for-profit, 501(c)(3) organization whose innovative programs challenge the stigma associated with difference and celebrate the richness of genetic variation with positive images and powerful life stories.<\/font><\/p>\n

The Hermansky-Pudlak Syndrome Network Inc.<\/a><\/strong> –<\/font>The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorder such as Chediak Higashi Syndrome.<\/font><\/p>\n

Vision Related
\n<\/strong><\/u>
\nAmerican Nystagmus Network<\/a><\/strong> –<\/font>A nonprofit organization to serve the needs and interests of individuals with nystagmus and and\/or their families. <\/font><\/p>\n

Hadley School for the Blind<\/a><\/font><\/font><\/strong> –Offers free courses to parents and grandparents of children who are blind or visually impaired on a variety of vision related subjects.<\/font><\/p>\n

The Low Vision Gateway<\/a><\/font><\/strong> -A comprehensive list of low vision resources from around the world. <\/font><\/p>\n

Vision of Children<\/a><\/font><\/strong> -Information about current medical research, outreach, and education. <\/font><\/p>\n

NAPVI<\/a><\/strong> -National Association for Parents of the Visually Impaired- NAPVI is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities.<\/font><\/p>\n

Websites\/Blogs of parents of children with albinism
\n<\/u><\/strong>
\nAlana’s Albinism Site<\/a><\/strong><\/font><\/p>\n

Amber’s page<\/font><\/a><\/strong><\/p>\n

Emerson Porter<\/strong>
\n<\/a><\/font><\/p>\n

William’s Site<\/strong> <\/font><\/a><\/p>\n

Joseph Andrew<\/strong> <\/a><\/font><\/p>\n

Skate Angel<\/a><\/font><\/strong><\/p>\n

Life in Noodletown<\/strong><\/a><\/h4>\n

Ramblings of Casey<\/strong><\/a><\/h4>\n

Websites\/Blogs of adults with albinism
\n<\/u><\/strong><\/font>
\nHeather Kirkwood’s Blog<\/a><\/font><\/strong><\/font><\/p>\n

Bianca Knowlton’s Site<\/a><\/font><\/strong><\/p>\n

Nicole’s Site<\/a> <\/font><\/strong><\/p>\n

Annette’s Blog<\/font><\/strong><\/a><\/p>\n

Commercial Websites<\/font><\/strong><\/u><\/p>\n

Solar Eclipse<\/a><\/strong> -Sun protective clothing<\/font><\/p>\n

UV Sungear<\/font><\/a><\/strong> –Large selection of sun protective swimwear, clothing, sunglasses and hats for the whole family. Also have sunshades for car seats and strollers.<\/font><\/p>\n

Baby Ride<\/a> -Not the most organized site, but they have a lot of really unique products in the accessories section, including a great sunshade by Jolly Jumper for full size car seat.<\/font><\/p>\n

Sun Togs<\/font><\/a> -Sun protective clothing for all ages and cool kids sunglasses. <\/font><\/p>\n

North Solar Screen<\/font><\/a> -Various types of window tinting and window shades.<\/font><\/p>\n

Llumar Window Film and Window Tint<\/a><\/font> – Professional glass film\/tinting for home or auto. <\/font><\/p>\n

Industrial Shadeports<\/font><\/a> – Custom build shade structures<\/font><\/p>\n

Protect-a-Bub<\/a> – Sun protective clothing and accessories.
\n<\/font><\/p>\n

One Step Ahead<\/a> -They have a variety of products for babies and children, including many for sun protection. Shop through iGive<\/a>.<\/font>
\n<\/u><\/strong><\/p>\n

Other Resources<\/font><\/u><\/strong><\/p>\n

SENSwitcher<\/a> -Free computer application\/game to promote vision development. You can run the program online or you can download it onto your computer.<\/font><\/p>\n

Seedlings <\/a>-A non-profit organization providing a wonderful selection of high quality, low cost braille books for children. They have many popular titles and the books include both print text and the braille.<\/font><\/p>\n

Library Reproduction Service<\/a> – Large print books for children and adults and Large Print reproductions of educational materials for special needs students. <\/font><\/p>\n

Perky Duck<\/a> – A six-key braille emulator computer program for creating braille files. Uses a regular computer keyboard. Good for parents to practice on when learning braille.<\/font><\/p>\n

Articles<\/strong><\/u><\/font><\/p>\n

Socialization and the Child with Low Vision<\/a><\/font><\/p>\n

The Role and Function of the Teacher of Students with Visual Impairments<\/a><\/font><\/p>\n

Coming Soon… more blurbs, more personal websites\/blogs, commercial websites. <\/strong><\/em><\/font><\/p>\n


\n\"Creative
\n<\/a><\/p>\n

This
\nwork<\/span> is licensed under a
\nCreative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

Albinism Information NOAH -The National Organization for Albinism and Hypopigmentation- An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. Albinism International -An online support community for people with albinism, parents of children with albinism, and people related persons with albinism. Albinism … Continue reading “Resources”<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[13],"tags":[22,29,35],"class_list":["post-96","post","type-post","status-publish","format-standard","hentry","category-resources","tag-albinism","tag-albinism-resources","tag-children-with-albinism"],"yoast_head":"\nResources - Parent of a Child with Albinism<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/parentofachildwithalbinism.com\/?p=96\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Resources - Parent of a Child with Albinism\" \/>\n<meta property=\"og:description\" content=\"Albinism Information NOAH -The National Organization for Albinism and Hypopigmentation- An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. 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