{"id":90,"date":"2008-02-15T01:15:37","date_gmt":"2008-02-15T06:15:37","guid":{"rendered":"http:\/\/www.parentofachildwithalbinism.com\/2008\/02\/15\/siblings-of-a-child-with-albinism\/"},"modified":"2008-02-15T01:15:37","modified_gmt":"2008-02-15T06:15:37","slug":"siblings-of-a-child-with-albinism","status":"publish","type":"post","link":"https:\/\/parentofachildwithalbinism.com\/?p=90","title":{"rendered":"Siblings of a Child with Albinism"},"content":{"rendered":"<p>Lately I&#8217;ve been thinking about why I created the category on this site called Dominick and Rebekah.  At the same time, I&#8217;ve been thinking about or feeling like lately I&#8217;ve been spending an enormous amount of my time focused on Lyra&#8217;s needs and neglecting the needs of Dominick and Rebekah. Have they noticed? I&#8217;m sure they have.   A couple of friends and family members even questioned me about the time I&#8217;ve been spending on Lyra compared to my other two.  How has it affected them?  I have no clue, at least right at this moment.   Apparently I&#8217;ve been too busy to notice, and that&#8217;s a <em>problem<\/em>.<\/p>\n<p>So this is the type of post that would fall under the category Dominick and Rebekah.  How does having a child with albinism affect the lives of his\/her siblings both in positive ways and in negative ways?<\/p>\n<p>Earlier this week, an interesting post popped up in my blog reader from a blog I recently subscribed to, <a href=\"http:\/\/specialchildren.about.com\/\" target=\"_blank\" rel=\"noopener\">Parenting Special Needs<\/a> on About.com.  The post was entitled: <a href=\"http:\/\/specialchildren.about.com\/od\/supportforsiblings\/a\/siblingsknow.htm\" target=\"_blank\" rel=\"noopener\">What Siblings Would Like Parents to Know<\/a>.  I think it was exactly what I needed to read and exactly when I needed to read it.  A couple of things I read in it really jumped out at me.<br \/>\nThe first, was that siblings of a child with special needs will be in the life of that child longer than anyone else.  Dominick and Rebekah will have a relationship with their sister long after I&#8217;m gone.  What kind of relationship do I want that to be?   Of course I want it to be a positive relationship.  I want them all to be close, and to love and care for each other. The last thing I want to do is cause Dominick or Rebekah to feel resentment.  What if I&#8217;ve already started to do that?<\/p>\n<p>The other point in the article that jumped out at me was this: &#8220;One child\u2019s special needs should not overshadow another\u2019s achievements and milestones.&#8221;   This made me think back to a couple of weeks ago.  Dominick turned 6 on January 31st and we had a birthday party for him the following weekend.  However, because I didn&#8217;t bother to send out the invitations until a week before the party, only 1 of his friends showed up at the party.  He didn&#8217;t seem to mind, and he had a blast with his one friend, but I&#8217;m sure at some point he thought about it and was a little sad.  It was MY fault, but who would Dominick blame&#8230;me&#8230;or Lyra?<\/p>\n<p>I know this is just one experience\/situation and ONE experience doesn&#8217;t make or break a relationship.  I may be reading more into it, but at the very least, it&#8217;s been a wake-up call.  I need to pay better attention to how I&#8217;m spending time with my children and how equally.  I need to remind myself that I as I raise my children, I am laying the foundation for their evolving relationship as siblings and ask myself if I want that relationship to be positive or negative.<\/p>\n<p>Here are a couple of resources I found related to the subject of siblings of children with special needs:<\/p>\n<p><a href=\"http:\/\/www.siblingsupport.org\/\" target=\"_blank\" rel=\"noopener\">The Sibling Support Project<\/a><\/p>\n<p><a href=\"http:\/\/www.athealth.com\/Consumer\/disorders\/disabsibling.html\" target=\"_blank\" rel=\"noopener\">Children with Disabilities: Understanding Sibling Issues<\/a><\/p>\n<p><a href=\"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/3.0\/us\/\" rel=\"license\"><br \/>\n<img decoding=\"async\" src=\"http:\/\/i.creativecommons.org\/l\/by-nc-nd\/3.0\/us\/88x31.png\" alt=\"Creative Commons License\" style=\"border-width:0;\" \/><br \/>\n<\/a><\/p>\n<p>This<br \/>\n<span>work<\/span> is licensed under a<br \/>\n<a href=\"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/3.0\/us\/\" rel=\"license\">Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Lately I&#8217;ve been thinking about why I created the category on this site called Dominick and Rebekah. At the same time, I&#8217;ve been thinking about or feeling like lately I&#8217;ve been spending an enormous amount of my time focused on Lyra&#8217;s needs and neglecting the needs of Dominick and Rebekah. Have they noticed? I&#8217;m sure &hellip; <a href=\"https:\/\/parentofachildwithalbinism.com\/?p=90\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Siblings of a Child with Albinism&#8221;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,10],"tags":[22,64],"class_list":["post-90","post","type-post","status-publish","format-standard","hentry","category-dominick-and-rebekah","category-new-posts","tag-albinism","tag-siblings"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Siblings of a Child with Albinism - Parent of a Child with Albinism<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/parentofachildwithalbinism.com\/?p=90\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Siblings of a Child with Albinism - Parent of a Child with Albinism\" \/>\n<meta property=\"og:description\" content=\"Lately I&#8217;ve been thinking about why I created the category on this site called Dominick and Rebekah. At the same time, I&#8217;ve been thinking about or feeling like lately I&#8217;ve been spending an enormous amount of my time focused on Lyra&#8217;s needs and neglecting the needs of Dominick and Rebekah. Have they noticed? 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