{"id":42,"date":"2007-04-04T07:56:00","date_gmt":"2007-04-04T14:56:00","guid":{"rendered":"http:\/\/www.parentofachildwithalbinism.com\/?p=21"},"modified":"2007-04-04T07:56:00","modified_gmt":"2007-04-04T14:56:00","slug":"first-visit-to-a-dermatologist","status":"publish","type":"post","link":"https:\/\/parentofachildwithalbinism.com\/?p=42","title":{"rendered":"First Visit To a Dermatologist"},"content":{"rendered":"

<\/a>
\nOn March 27th, Lyra had her first visit with a pediatric dermatologist. The doctor provided a lot of great advice and suggestions and showed a lot of expertise in the areas of skin care and sun protection for a person with albinism.
\nHowever, I was extremely disappointed by her lack of general knowledge regarding albinism. She asked me how I knew Lyra inherited albinism from me and my husband.
\nDoes she not know albinism is a genetic condition and the ONLY way Lyra could get oculocutaneous albinism is by inheriting it from me and my husband because it is an autosomal recessive gene. The only type of albinism that isn’t autosomal recessive is a form of ocular albinism that is X linked. You can’t “get” albinism any other way…its not leprosy.<\/p>\n

Also, she asked me if Lyra had any hearing problems, because “sometimes people with albinism have hearing loss.” WRONG!!!!!! This is SOOOO incorrect. I wasn’t sure at the time she said this, but I’ve done my research. The only condition even related to albinism, that does include hearing problems, is called Waardenburg syndrome. In the definition, it is referred to as “partial albinism” and it is an AUTOSOMAL DOMINANT condition. There no forms of oculocutaneous albinism in which hearing is affected.
\nIf this dermatologist did happen to treat a person who had albinism AND hearing loss, then the hearing loss was caused by some other condition…not the albinism.
\nParents of a child with albinism have enough things to worry about without someone telling them their child may have hearing loss.<\/p>\n

Lastly, she referred to Lyra as having pink eyes. Now I know sometimes when the bright lights are shining directly into them, they my APPEAR pink, but Lyra has BLUE EYES! This is a huge pet peeve of mine. There is no such thing as pink iris color.
\nShe is a doctor and should know this.<\/p>\n

She did refer me to NOAH, which I am already a member of, but I think she needs to visit their website and do a little homework.<\/p>\n


\n\"Creative
\n<\/a><\/p>\n

This
\nwork<\/span> is licensed under a
\nCreative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

On March 27th, Lyra had her first visit with a pediatric dermatologist. The doctor provided a lot of great advice and suggestions and showed a lot of expertise in the areas of skin care and sun protection for a person with albinism. However, I was extremely disappointed by her lack of general knowledge regarding albinism. … Continue reading “First Visit To a Dermatologist”<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[15],"tags":[],"class_list":["post-42","post","type-post","status-publish","format-standard","hentry","category-sun-skin-protection"],"yoast_head":"\nFirst Visit To a Dermatologist - Parent of a Child with Albinism<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/parentofachildwithalbinism.com\/?p=42\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"First Visit To a Dermatologist - Parent of a Child with Albinism\" \/>\n<meta property=\"og:description\" content=\"On March 27th, Lyra had her first visit with a pediatric dermatologist. The doctor provided a lot of great advice and suggestions and showed a lot of expertise in the areas of skin care and sun protection for a person with albinism. However, I was extremely disappointed by her lack of general knowledge regarding albinism. … Continue reading "First Visit To a Dermatologist"\" \/>\n<meta property=\"og:url\" content=\"http:\/\/parentofachildwithalbinism.com\/?p=42\" \/>\n<meta property=\"og:site_name\" content=\"Parent of a Child with Albinism\" \/>\n<meta property=\"article:published_time\" content=\"2007-04-04T14:56:00+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg\" \/>\n<meta name=\"author\" content=\"Mashawna Thompson\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mashawna Thompson\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"http:\/\/parentofachildwithalbinism.com\/?p=42\",\"url\":\"http:\/\/parentofachildwithalbinism.com\/?p=42\",\"name\":\"First Visit To a Dermatologist - Parent of a Child with Albinism\",\"isPartOf\":{\"@id\":\"http:\/\/parentofachildwithalbinism.com\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/parentofachildwithalbinism.com\/?p=42#primaryimage\"},\"image\":{\"@id\":\"http:\/\/parentofachildwithalbinism.com\/?p=42#primaryimage\"},\"thumbnailUrl\":\"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg\",\"datePublished\":\"2007-04-04T14:56:00+00:00\",\"dateModified\":\"2007-04-04T14:56:00+00:00\",\"author\":{\"@id\":\"http:\/\/parentofachildwithalbinism.com\/#\/schema\/person\/a471dec6c18ca79af4199be8c7442dcd\"},\"breadcrumb\":{\"@id\":\"http:\/\/parentofachildwithalbinism.com\/?p=42#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/parentofachildwithalbinism.com\/?p=42\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"http:\/\/parentofachildwithalbinism.com\/?p=42#primaryimage\",\"url\":\"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg\",\"contentUrl\":\"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/parentofachildwithalbinism.com\/?p=42#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"http:\/\/parentofachildwithalbinism.com\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"First Visit To a Dermatologist\"}]},{\"@type\":\"WebSite\",\"@id\":\"http:\/\/parentofachildwithalbinism.com\/#website\",\"url\":\"http:\/\/parentofachildwithalbinism.com\/\",\"name\":\"Parent of a Child with Albinism\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"http:\/\/parentofachildwithalbinism.com\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"http:\/\/parentofachildwithalbinism.com\/#\/schema\/person\/a471dec6c18ca79af4199be8c7442dcd\",\"name\":\"Mashawna Thompson\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"http:\/\/parentofachildwithalbinism.com\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/88533ae855a58e608324cc07fe30e4ab4c42e61167eeb244ea79070829040915?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/88533ae855a58e608324cc07fe30e4ab4c42e61167eeb244ea79070829040915?s=96&d=mm&r=g\",\"caption\":\"Mashawna Thompson\"},\"sameAs\":[\"https:\/\/parentofachildwithalbinism.com\"],\"url\":\"https:\/\/parentofachildwithalbinism.com\/?author=2\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"First Visit To a Dermatologist - Parent of a Child with Albinism","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/parentofachildwithalbinism.com\/?p=42","og_locale":"en_US","og_type":"article","og_title":"First Visit To a Dermatologist - Parent of a Child with Albinism","og_description":"On March 27th, Lyra had her first visit with a pediatric dermatologist. The doctor provided a lot of great advice and suggestions and showed a lot of expertise in the areas of skin care and sun protection for a person with albinism. However, I was extremely disappointed by her lack of general knowledge regarding albinism. … Continue reading \"First Visit To a Dermatologist\"","og_url":"http:\/\/parentofachildwithalbinism.com\/?p=42","og_site_name":"Parent of a Child with Albinism","article_published_time":"2007-04-04T14:56:00+00:00","og_image":[{"url":"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg"}],"author":"Mashawna Thompson","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Mashawna Thompson","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"http:\/\/parentofachildwithalbinism.com\/?p=42","url":"http:\/\/parentofachildwithalbinism.com\/?p=42","name":"First Visit To a Dermatologist - Parent of a Child with Albinism","isPartOf":{"@id":"http:\/\/parentofachildwithalbinism.com\/#website"},"primaryImageOfPage":{"@id":"http:\/\/parentofachildwithalbinism.com\/?p=42#primaryimage"},"image":{"@id":"http:\/\/parentofachildwithalbinism.com\/?p=42#primaryimage"},"thumbnailUrl":"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg","datePublished":"2007-04-04T14:56:00+00:00","dateModified":"2007-04-04T14:56:00+00:00","author":{"@id":"http:\/\/parentofachildwithalbinism.com\/#\/schema\/person\/a471dec6c18ca79af4199be8c7442dcd"},"breadcrumb":{"@id":"http:\/\/parentofachildwithalbinism.com\/?p=42#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["http:\/\/parentofachildwithalbinism.com\/?p=42"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"http:\/\/parentofachildwithalbinism.com\/?p=42#primaryimage","url":"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg","contentUrl":"http:\/\/bp2.blogger.com\/_wkmbaDXRzi4\/RhxytbAfoQI\/AAAAAAAAAGw\/yaf716_CVUA\/s200\/easterb.jpg"},{"@type":"BreadcrumbList","@id":"http:\/\/parentofachildwithalbinism.com\/?p=42#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"http:\/\/parentofachildwithalbinism.com\/"},{"@type":"ListItem","position":2,"name":"First Visit To a Dermatologist"}]},{"@type":"WebSite","@id":"http:\/\/parentofachildwithalbinism.com\/#website","url":"http:\/\/parentofachildwithalbinism.com\/","name":"Parent of a Child with Albinism","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"http:\/\/parentofachildwithalbinism.com\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"},{"@type":"Person","@id":"http:\/\/parentofachildwithalbinism.com\/#\/schema\/person\/a471dec6c18ca79af4199be8c7442dcd","name":"Mashawna Thompson","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"http:\/\/parentofachildwithalbinism.com\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/88533ae855a58e608324cc07fe30e4ab4c42e61167eeb244ea79070829040915?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/88533ae855a58e608324cc07fe30e4ab4c42e61167eeb244ea79070829040915?s=96&d=mm&r=g","caption":"Mashawna Thompson"},"sameAs":["https:\/\/parentofachildwithalbinism.com"],"url":"https:\/\/parentofachildwithalbinism.com\/?author=2"}]}},"_links":{"self":[{"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=\/wp\/v2\/posts\/42","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=42"}],"version-history":[{"count":0,"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=\/wp\/v2\/posts\/42\/revisions"}],"wp:attachment":[{"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=42"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=42"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/parentofachildwithalbinism.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=42"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}