The new book, “Raising a Child with Albinism: A Guide to the Early Years” is now available for purchase.  It is published by the National Organization for Albinism and Hypopigmentation (NOAH) and is the first of its kind.  This book will be an invaluable resource for new parents of a child with albinism.  It truly is a great book.  I’ve already bought 6 copies. 😛 I am also one of the 20 contributing writers and one of the 8 contributing photographers.  🙂   You’ll find pics of my Lyra on pages 41 and 88. Here is the book description from the NOAH website: Raising aRead More →

Here is an idea. Maybe I’m a little obsessive, but oh well. For anyone who has seen NOAH’s albinism info. “business card, you’ll notice I modeled ours after it. I first got the idea to make something like this after Lyra’s TVI told me about a parent who got sick of answering the same questions over and over again and decided to make bookmarks with information about albinism to give to people. Then I saw NOAH’s cards and knew I had to make our own. I am a strong believer in educating anyone who has questions or anyone who only knows the myths regarding albinism.Read More →

Albinism Information NOAH (The National Organization for Albinism and Hypopigmentation)- An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences. Albinism International– An online support community for people with albinism, parents of children with albinism, and people related persons with albinism. Albinism Fellowship UK– An organization that aims to provide information, advice, and support for people with albinism and their families. SARA Foundation (Supporting Albinism Research and Awareness)- A site created to help parents who have children who are diagnosed with albinism. Positive Exposure– Positive Exposure is a not-for-profit, 501(c)(3) organization whoseRead More →